The Brain Cancer Group is a collaborative team of leading brain cancer specialists. We apply insights from frontline patient care to inform activities across research, support and education.
Launching and representing our renewed push to lead collaboration was the “Collaborative Care” event which we hosted at NSW Parliament House in May 2018. In what was our 3rd year of holding an event during Brain Cancer Awareness Month, in 2018 we wanted to use the opportunity of being at NSW Parliament House to bring together various groups from across the brain cancer not-for-profit sector. The focus of the event was to help start the conversation on a collaborative approach to improving outcomes for brain cancer patients and their families.
We were delighted with the attendance, participation and commitment of the various groups who attended, namely:
- Cancer Council NSW
- Charlie Teo Foundation
- Cure Brain Cancer
- Brain Cancer Biobanking Australia
- BTAA – Brain Tumour Association Australia
- Mark Hughes Foundation
- The NSW Neuro-Oncology Group
- The Brain Cancer Group (formerly Sydney Neuro Oncology Group)
- Cooperative Trials Group for Neuro-Oncology (COGNO)
We have continued meaningful collaboration since this event. Some highlights include :
- In February 2019 The Brain Cancer Group, From Care2Cure joined other Not-for-Profit groups (see Cure Brain Cancer submission) to endorse a PBAC listing of bevacizumab on the PBS for the treatment of relapsed glioblastoma (Grade IV glioma, GBM).
- In October 2018, it was great to be able to work with Brain Tumour Alliance Australia (BTAA) and Mark Hughes Foundation to host 2 global leaders in the field of Neuro-Oncology care at the Kolling Institute of Medical Research in Sydney. Our own Mustafa Khasraw gave an update from the recent COGNO conference and Professor Susan Chang (University of California) shared her expertise on “Developing a caregiver program in Neuro-Oncology”. Dr Terri Armstrong (National Cancer Institute) provided our audience of Health Care Professionals with invaluable insights on managing patient symptoms and outcomes. This event was a part of our “Collaborative Care” initiative, which aims to extend the reach and impact of our long running, dedicated Neuro-Oncology Care Coordination program. Thanks to all that helped deliver this event and to those committed folk that attended.