PATIENT & CARER INFORMATION

Fact Sheets

Cancer Institute Brain Cancer Factsheets:

Factsheets Overview
 Can’t seem to get yourself going? Don’t seem to care about anything?
 Anger and trouble with your temper
 Are you feeling tense, nervous and overwhelmed?
 Do you feel exhausted or tired a lot of the time?
 Can’t seem to think straight?
 Can’t seem to say or do the right thing at the right time?
 Do you feel that you are on an emotional roller coaster?
 Do you keep forgetting things?
 Are you having difficulty staying on task?
 Can’t find the right word or talk too much?
 Feeling lost, not knowing where you are?
 Do you repeat yourself or get stuck like a broken record?
 Do you only think about yourself and find it hard to see other people’s point of view?
 Do you sometimes act without thinking?
 When how you look no longer seems to be important
 Do you feel sad, tearful, can’t seem to enjoy yourself?

Resource Sheets

Cancer Institute Brain Cancer Resource Sheets:

Anger Management
Stress Management and Relaxation Techniques
Stress Management
Activity Scheduling
How to Cope with Depression
Mindfulness Exercise
Goal Setting
Memory Tips
Timetable
Checklist for Getting Ready
Problem Solving

 

 

Carer Fact Sheets

 

Transitions in Care for Patients with Brain Tumors: Palliative and Hospice Care. Michael Cohn, PhD Brook Calton, MD Susan Chang, MD Margaretta Page RN, MS

This document is published by the ‘Neuro-Oncology Gordon Murray Caregiver Program’, University of California, San Francisco.
Where Acetaminophen (Tylenol) is referred to in the document, please replace this with Paracetamol (Panadol) in Australia

 

End-of-Life Care for Brain Tumor Patients: Manual for Health Care Providers. Susan M. Chang, MD Erin Dunbar, MD Virginia Dzul-Church, MD Laura Koehn, MD Margaretta S. Page, RN, MS

This document is published by the ‘Neuro-Oncology Gordon Murray Caregiver Program’, University of California, San Francisco.
Where Acetaminophen (Tylenol) is referred to in the document, please replace this with Paracetamol (Panadol) in Australia”
On page 13, ADSL’s/IADL’s refer to: Activities of Daily Living and Instrumental Activities of Daily Living

 

Orientation to Caregiving. A Handbook for Family Caregivers of Patients with Brain Tumors Goodman S, Rabow, M & Folkman, S (2013). 2nd Edn. Caregivers project/Osher Center for Integrative Medicine. University of California, San Francisco. This document is published by the Osher Center for Integrative Medicine at the University of California, San Francisco. A lot of the information is USA and California based and not relevant to Australia.
Please note that in Australia Emergency services are reached by dialing 000, not 911 (Chapter 3 specifically)
Useful segments for caregivers include:
Chapter 2 (Getting Organised),
Chapter 3 (Managing symptoms, possible side effects of treatment and what to do),
Chapter 4 (Clinical trials),
Chapter 5 (Communicating with children and your partner),
Chapter 7 (Living wills, power of attorney, palliative care, hospices and organizing one’s affairs), and
Chapter 8 (Strategies to maintain the wellness of the caregiver).

 

 

Carer Information Kit – available NSW Cancer Council or TBCG office
Carers Telephone Support Groups  – Cancer Council NSW  Tel 131120
Carers NSW – www.carersnsw.org.au
Carer Support – www.carersupport.org.au
Carers Australia – www.carersaustralia.com.au
Health Insite – http://www.healthinsite.gov.au/article/caring-someone-cancer