PATIENT & CARER INFORMATION

Carer Fact Sheets

 

Transitions in Care for Patients with Brain Tumors: Palliative and Hospice Care. Michael Cohn, PhD Brook Calton, MD Susan Chang, MD Margaretta Page RN, MS

This document is published by the ‘Neuro-Oncology Gordon Murray Caregiver Program’, University of California, San Francisco.
Where Acetaminophen (Tylenol) is referred to in the document, please replace this with Paracetamol (Panadol) in Australia

 

End-of-Life Care for Brain Tumor Patients: Manual for Health Care Providers. Susan M. Chang, MD Erin Dunbar, MD Virginia Dzul-Church, MD Laura Koehn, MD Margaretta S. Page, RN, MS

This document is published by the ‘Neuro-Oncology Gordon Murray Caregiver Program’, University of California, San Francisco.
Where Acetaminophen (Tylenol) is referred to in the document, please replace this with Paracetamol (Panadol) in Australia”
On page 13, ADSL’s/IADL’s refer to: Activities of Daily Living and Instrumental Activities of Daily Living

 

Orientation to Caregiving. A Handbook for Family Caregivers of Patients with Brain Tumors Goodman S, Rabow, M & Folkman, S (2013). 2nd Edn. Caregivers project/Osher Center for Integrative Medicine. University of California, San Francisco. This document is published by the Osher Center for Integrative Medicine at the University of California, San Francisco. A lot of the information is USA and California based and not relevant to Australia.
Please note that in Australia Emergency services are reached by dialing 000, not 911 (Chapter 3 specifically)
Useful segments for caregivers include:
Chapter 2 (Getting Organised),
Chapter 3 (Managing symptoms, possible side effects of treatment and what to do),
Chapter 4 (Clinical trials),
Chapter 5 (Communicating with children and your partner),
Chapter 7 (Living wills, power of attorney, palliative care, hospices and organizing one’s affairs), and
Chapter 8 (Strategies to maintain the wellness of the caregiver).

 

 

Carer Information Kit – available NSW Cancer Council or TBCG office
Carers Telephone Support Groups  – Cancer Council NSW  Tel 131120
Carers NSW – www.carersnsw.org.au
Carer Support – www.carersupport.org.au
Carers Australia – www.carersaustralia.com.au
Health Insite – http://www.healthinsite.gov.au/article/caring-someone-cancer